Rethinking therapy and getting to the core of the issue

I did not have a good experience at Ethan’s therapist appointment tonight.

It started when we arrived. We were early, but there was already a line for the 6 p.m. appointments. I was third in line.

As I waited for Guy #1 to wrap up his business (WHAT could have taken him 10 minutes?!), I was forced to listen to the most asinine conversation behind me. I say “forced” because these guys were talking at an incredible volume, particularly for the subject matter.

From what I could gather, these two teen boys were there for a meeting – a meeting of teens with a drinking or drug problem. Teen dudes were talking about how, even though they were caught and arrested for drinking and driving, they WILL still drink in the future. One was even bragging about how he was going to convince the DA to reduce the charges against him. These teens couldn’t have been older than 16 years.

When it was my turn at the window, I was pretty irritated. Listening to two kids talking (loudly) about beating the system and not learning their lessons (especially when alcohol is involved), really pissed me off. Then the woman behind the glass window couldn’t understand how to process my change in insurance. (Former employer and COBRA really screwed up my August coverage.)

By this time, Ethan had already gone to the therapist’s office. They had been talking for almost 15 minutes when I entered the room. We talked about what happened since the last appointment, about my meeting with E’s teachers, and how E was affected by the burial at school.

Then the therapist suggested I have Ethan tested for ADD by a neuropsychologist. I’m not opposed to an ADD or ADHD diagnosis. In fact, a few months ago, I would have jumped at the chance to have him tested, evaluated, diagnosed. I kinda thought maybe Ethan was a bit ADD/ADHD; I mean, some of his behaviors and the fact that Mike was ADHD (but untreated). But now…now, I think we need to deal with the grief issues first. The more I read about how young kids process death and deal with grief, the more I think that there’s a core issue that needs to be dealt with first. Before we can address ANY other issue, I think Ethan needs to develop tools to deal with my dad’s death and HIS dad’s death.

I expressed that to the therapist. I feel like I was brushed off. I raised it again. And again, I thought he was blowing me off.

Since we stated seeing this therapist, I haven’t felt like he was dealing with the grief issues. Glossing over them. Maybe even ignoring them. Bringing up superficial questions to satisfy my concerns, but really not “dealing” with it.

The problem is that Ethan likes this guy (maybe because Ethan doesn’t have to talk about anything that’s really bothering him). I’m anxious to see how the grief/peer meetings will go, and if that will help. In the meantime, I’m going to start looking at other options.

Parent in-take

Like Wednesday morning, Thursday started with tears, too.

I found a local organization that helps kids deal with the grieving process. It’s not counseling and it’s not therapy. The organization is structured with regular peer gatherings in which kids can share their feelings and talk about what’s going on their lives and how they are coping with the death of a loved one. Every kid there has lost someone – a grandparent, a sibling, a cousin, a parent.

I talked to the director by phone earlier this week. Today was “parent intake day.”

The organization doesn’t take everyone. Space is limited. And there’s a process to matching the kid (and parent) to the right group. That’s why the director meets with every parent first.

I knew I would have to talk about how my dad’s and Mike’s death have affected Ethan, so the tears started before I was even in the shower this morning. I can usually stay strong – until I have to talk about the effect on my kids.

The organization is a good 35 minute drive from my house, and it’s in a part of town I’ve never been.  I allowed plenty of time to find the place, but when I got there, I just couldn’t pull into the parking lot.

I passed it, on purpose.

I drove down the street, did some banking, stopped for a Coke, checked out the window display at some of the cute little shops. Now, I was officially late.

I’m never late. Being on time is late to me. If something starts at 9 a.m. and I’m there at 9 a.m., I’m late. I would prefer 10 minutes early, at least. I can sit and observe. I can collect my thoughts. I can mentally prepare. But this morning, I was late. On purpose. Being late ALMOST never happens – on purpose, NEVER.

I turned around and s-l-o-w-l-y drove back. I was now about 10 minutes late and having thoughts of wanting to blow off the appointment entirely. “It’s for Ethan,” I thought to myself and pulled into the parking lot.

I approached the discrete, old, brick building with a little bit of mixed emotions. “It sucks that there has to be places like this,” I thought and I walked through the front door.

The director greeted me and handed me some paperwork. Name, address, occupation, employer… Fine.  Child’s name, school… OK. Then I got to the section about the deceased. Cue the tears.

I kept it brief and matter of fact. Then I turned the page.

Half of the page was dedicated to how I was dealing with the death, the other half to how Ethan was coping. Rate on a scale from 1-5 each of these statements. Cue more tears.

I finished the paperwork, grabbed a Kleenex and the director entered the room. We talked for more than an hour about the loss of my dad and the death of Mike. How both impacted me, the kids, and my mom.  More tears.

Ever cried so much that the Kleenex was wringing wet? Yeah, that was my morning.

The director gave me a tour of the house and explained the program. We talked about Ethan’s needs and what was going on with him at school.

His problems? All textbook kids-who-are-grieving. I felt a sense of relief knowing that during meetings, all the kids are hyper and squirrely. That the kids have to state their name and age before a meeting, but don’t have to participate if they don’t want to. That art and other ways of expression are big components to the meetings. That the parents get together and meet during this time, too.

It seems like a solid program. One that can help us through this. I’m hopeful. And a hot mess (must not forget to reapply makeup before my class this afternoon).

I just hope that Friday is tear-free – or I’ll need to buy more mascara.

Parenting is hard…

I hate starting off the day by crying in front of people I don’t really know.

But that was the beginning of my Wednesday. I had a meeting with Ethan’s home room and reading teachers this morning. It’s been a rocky start to the second grade for E.

I’m blessed to know that Ethan goes to school at a place with very understanding teachers. Teachers who want to help him (and us). Teachers who “get” what he’s going through. (E’s second grade teacher was widowed herself 10 years ago.) Teachers who want to find a solution and help him grow in a positive direction.

I love hearing that he’s a smart kid. A funny kid. A kid who tells great stories. A kid who loves and respects his mom so much. Those were the highlights of the morning conference.

But…

Ethan is being extremely disruptive in class. He’s talking out of turn, humming and singing, chewing on whatever he can find (fingers, pencils, paper, shirt sleeves), getting out of his seat, arguing with the teachers… He’s being difficult.

He’s also starting to struggle with reading.

I’ve noticed within the last few weeks that he’s stumbling quite a bit when we do our reading homework. He’s tripping over words that were part of the previous sentence. He struggles with words that were part of his spelling test the previous week. His reading is really jerky, not fluid. It’s also negatively impacting his ability to write sentences (he can’t “sound out” the words in the same way as other kids).

The teachers think he may need some speech therapy. (He was in speech from 3 years old through kindergarten, then tested out of help in first grade, but they assessed he may need help in grade two and beyond. Apparently some sounds – like r – aren’t “helped” until certain grade levels.)

I’m on board for speech. But it still doesn’t answer why… Why is he now struggling so much, having trouble in class, being so disruptive?

I’m not entirely sure what’s going on with Ethan, but there’s obviously something troubling him. (Like the kid hasn’t had major life-changing things happening for the last few years… pick any number of things that could be causing the trouble. Seriously.)

I’m trying a few new things:

  • I enrolled Ethan in tae kwon do. I think the discipline and structure will be good for him. I know similar programs have helped other kids focus and gain self-confidence. I hope it works for Ethan. And E is SUPER stoked about it. (Plus, the physical activity won’t hurt a kid with a lot of energy.)
  • I found a local peer-focused program that helps kids deal with their grief. I’m meeting with the director tomorrow to discuss our situation and see if the program may be right for Ethan. I know he feels like he’s the “only kid without a dad,” so I hope seeing and interacting with other kids his age will help him sort through his anger and confusion and other emotions.
  • I’ll increase his visits to his therapist. We meet with him on Monday. I think E needs to see him more often. While I’m a little concerned that the therapist isn’t addressing the core issue (grief), he is providing the tools E needs to deal with anger issues. And Ethan really likes the guy. I’m also going to sign permission for the therapist to talk directly to Ethan’s teachers – since E’s behavior is different at home. (We still have some issues at home, but overall, he’s a super loving, attentive kid.)
  • We’ve stepped back on reading a bit. He still has his mandated 15 minutes during homework time, but I’ve also added another 10-15 minutes each night. Ethan is responsible for selecting a couple of books and reading them to Lauren each night. This helps him practice a bit more – and it gives him a reason to read “baby” books for now to practice the basics of reading (as opposed to reading the chapter books that he so desperately wants to read.)

This parenting-thing is hard sometimes…

Burial

There’s a cemetery on the grounds of Ethan’s school. It’s right next to the playground, just off the school’s parking lot. It’s creeped him out since he started there earlier this year (just weeks before his dad died).

Late last week, Ethan got in trouble during gym class and had to miss recess as a punishment. It was halfway through recess when a school aide came into Ethan’s class to let his teacher know that the kids would be coming in early. “There’s a burial going on and we want to respect the family,” said the aide in explanation.

Ethan’s eyes grew wide, tears filled them, and he freaked out. He got up from his desk and ran to the other side of the room. He started sobbing, wailing. He was uncontrollable.

His teacher, who was widowed about five years ago, hugged him close. She ended up sending him to the principal to calm down before his classmates saw him all red-faced and blotchy from crying.

This caused chaos to the rest of his week. He couldn’t get over the burial that had taken place days before (even though he didn’t see it). He was acting out in class, being disruptive and argumentative.

When his teacher told me about this, Ethan and I were on our way out-of-town. Ethan and I had a deal that if he was good all week, he could spend the night with me (without Lauren or my mom) and help me get set up for homecoming the next day – which I would be working as part of my obligation to my alma mater. Obviously, he had a tough week, and usually I’m a hard ass about this kind of thing, but I couldn’t punish him for being sad. When there was a funeral right there.

We left the school and walked to the car on Friday afternoon. Ethan was crying – probably because he thought he wouldn’t be allowed to go with me. He climbed into his seat and I sat on the floor of the backseat, just below his feet. We talked about how sad we were about the deaths of my dad and Mike. We hugged. I told him how much he meant to me. Then we went to homecoming. Ethan, too.

Since then, he’s mentioned the cemetery every time we pulled up to the school.Things like this are hard. It sucks that there’s a cemetery right next to the school. But there’s nothing we can do about that – the grave yard existed YEARS before the church or the school. There aren’t many burials, and I don’t remember there being any since Ethan started school there.

I doubt any of his classmates were fazed by the burial last week, but Ethan was. Most kids probably don’t give the cemetery a second thought. It’s just part of the school grounds. But it’s a constant reminder to a little boy who lost his dad and grandpa within years of each other.

It’s tough.

Two-for-one: sick kids

Ethan came into my room yesterday morning, complaining about a sore throat. One look inside and I knew it was strep – this is the fourth time in 2012 for him so I’m somewhat of a strep-diagnosis expert these days.

But that wasn’t the worst part of the morning.

When Lauren woke up a few minutes later, things seemed normal. I picked her up from her crib and cuddled her. “Stairs,” she said pointing, indicating that she wanted to go down to see her brother and grandma.

I set her on her feet and she fell over. She stood up, took a few steps, then ran into the dresser. Back up, few steps, fell down.

“Maybe her foot is asleep,” I thought.

“Let’s go to mommy’s room for a minute, Lauren,” I said, holding out my hand to help her down the hall.

It was a weird walk, down the hall from her room to mine. She was pulling to the right quite a bit and was very unsteady. She wasn’t upset or fazed by it, just wobbly.

I carried her down the stairs and called my mom into the room. We watched as Lauren stood up and fell. Stood up, took a few steps, and ran into the wall. Then she threw up. “Ear infection?” I said, looking at my mom. She nodded, “Probably.”

Since I had to take Ethan to the doc anyway for strep, I made an appointment for Lauren. In the couple of hours we had to wait before we left the house, Lauren seemed to get a little better. She wanted breakfast, wanted to drink something. And she seemed to get a little more steady on her feet – she still had to be watched closely, but it was a little better.

The doc appointment was LONG. Yes, Ethan had strep, but the doc couldn’t figure out what was going on with Lauren. Her ears were clear and there wasn’t a fever or any other obvious symptoms. By now, Lauren could walk the length of the hall without help, but she would have to hold out her arm like she was walking a tightrope every few steps. Or she would have to slow down when she was moving to the right uncontrollably. Still, MUCH improvement from the morning.

The doc (not our usual pediatrician, but another in the practice) consulted with the others in the office. A neurologist from the local children’s hospital was called. No one could figure it out. Since she was showing signs of significant improvement, the docs didn’t think there was an immediate, urgent problem (anymore). Thoughts for what could have been wrong included: a virus that was messing with her inner ears, baby vertigo (rare but not without possibility), a seizure, or a form of migraine. (SIDENOTE: I was diagnosed with migraine auras about 20 years ago. I don’t get the pain of a migraine, but I get weird symptoms that last for up to a few hours: numbness in one side of my body, loss of speech, dizziness. It’s scary and almost stroke-like to anyone watching me, but it goes away, leaving me tired but functioning.)

Right now, we’ve been told to wait-and-see if it happens again. The neurologist suggested that we go ahead and do an MRI, MRA and EEG on Lauren, just to have a baseline. Orders for these tests have been placed and we can do them anytime in the next few weeks. I’m a little concerned about the MRI/MRA since she will have to be sedated for the procedures.

This morning, Lauren was fine. Totally back to herself, no indication of difficulty walking. She stayed home from “baby school” so my mom could keep an eye on her, but she seems like nothing happened.

Here’s hoping this never happens again…