Bald, part one

Less than 24 hours after hair and makeup pampering for the boudoir photos, I was bald.

The oncologist reiterated on Friday that there was a 95 percent chance my hair would go in a week. A few other breast cancer patients who underwent similar treatment confirmed that it was day 14 when the hair went. My research confirmed no hair two weeks after the first dose of chemo.

I thought I’d hang onto my hair as long as possible, maybe proactively shaving it on about day 12 (given class schedules and other activities, Wednesday afternoon seemed like a good idea).

On Saturday morning, I took a long, hot shower. Washed and conditioned my hair. Ran my fingers through to detangle. I noticed some hair near the drain and moved it with my toes. More hair came up from the drain. Soon there was a pretty decent pile of dark brown curls in the corner of my shower. I got out.

I applied the leave-in conditioner; curl tonic, and styling crème to my hair. I felt the diffuser massage my scalp as I dried my hair upside down. For the first time ever, the diffuser kind of annoyed me. My scalp seemed tender. I finished with anti-frizz gel and hairspray.

I made a decision.

I drove to the salon to pick up my “cranial prosthesis.” Wendy was helping with a wig fitting, so I waited. The salon is nice. Nothing fancy. A small town hair place where older women get their weekly wash and style. Maybe some families have always gone there and continue going there with their kids and grandkids. It’s clean, comfortable. But there’s absolutely nothing fancy about it.

I talked to Carlie, one of the other stylists, who was working on the hair of a girl who looked like she was in high school. Carlie’s young daughter and her friend ran in and out of the room, playing with dolls and talking about shows on Nickelodeon. I played with my new wigs and tried on some hats.

When Wendy was finished, she helped me adjust the wigs to fit my head. “Do you have time today to cut my hair?” I asked her.

She asked if I wanted to go into a private room. I declined. I was sitting in an old hair styling chair. The yellow leather cracked. I just wanted to get it done with.

Wendy put a black cape over my shoulders. She ran her fingers through my curls. “I’m not really sure where to start. Can I cut it first, then shave?”

“You’re the expert,” I said.

Carlie recommended I take photos as it was being done. She handed me my phone from my jacket.

Wendy started cutting from the back. Snip, snip, snip. I could “feel” about three inches fall off. I swear I could hear it hit the ground. She continued, then placed her hand on my shoulder, “Are you okay?”

“Just keep going,” I said, taking photos. I was okay. I was in charge. This was my choice, not the chemo’s.

When my hair was about two inches long all the way around, she stopped to get the clippers. I started laughing to myself. “What if all this is a dream?” I thought. “What if I really don’t have cancer? What if the tests were wrong? Mixed up in the lab? I’m having my freaking head shaved, and maybe this isn’t real.”

The buzz of the clippers brought me back to reality. The blades felt warm, almost hot against my skin. She started in the back and moved to the sides. I realized that she was cutting it super short. I guess I thought it would be more “buzzed” cut than almost to the skin. Not leaving a half or a quarter inch of hair, but just a little but of stubble. But it was too late.

When she got to the top of my head, I asked her to leave a mohawk. “When else am I ever going to have one? I think the kids will laugh,” I thought. She cut and clipped my hair into one, but it looked way too harsh, so I had her cut it off, too. As the last few swipes of the clippers made their way across my head, Carlie stopped cutting the high schooler’s hair. “You look real pretty,” she said, smiling. “Really you do.” Her voice was soft, her eyes kind, and I knew she meant it. I started to cry for the first time through the whole cut. Little tears, but enough I had to stop and wipe my eyes.

I was adjusting to the image before me when the high school girl’s mom came in. She, too, was bald. Not because of cancer, but because she’s just crazy. “Bald is beautiful, baby!” she screamed, removing her pink knitted hat. Then she talked about kicking someone ass because they were taking too long in the tanning bed.

I tried on my wigs without hair underneath and made some adjustments to tightness. “You look real nice,” the crazy bald woman said. “You look pretty with or without that wig. I hope you’re going to be okay.”

Wendy rang up my purchases – two wigs, a wig cap (may or may not be necessary to help with any itchiness of the cranial prosthesis), and a brush (yeah, with curls, I didn’t own a brush that wasn’t full of the kids’ hair).

The salon wasn’t my usual hair place. But I was made to feel comfortable there through the whole process. Wendy and Carlie were very nice. Wendy spent more than 2.5 hours with me over the course of the week – from the fitting to the shaving to wigs 101, and the entire process was free of charge. I felt bad. At this kind of salon, with this kind of clientele, these ladies aren’t making much. I left Wendy a nice tip. She cried and hugged me. I cried and hugged her back. Then I drove home.

Going, going, gone.

Going, going, gone.

Weekend update

It’s Sunday night, and I’m feeling pretty damn okay. Little lazy, but not over fatigued. Aware of my bones, but not in pain or discomfort. Slight headache from lack of caffeine since I’m concentrating on water consumption. (I’m allowing one coffee or one soda a day.) I’d say on a scale from 1 (feeling completely shitty) to 10 (feeling great), I’m about a 7. I’m okay with that, especially since the docs predicted today would be the worst day post-treatment.

  • The day of and the day after my first chemo, I felt somewhat hyper. Lots of energy, lots of talking, almost restless. I got some stuff done around the house I’d been putting off. I played with the kiddos. Ran a few errands. No nausea at all, but I’m on four different anti-nausea meds through Tuesday. I did start having hot flashes, though. Oh boy, hot flashes are going to suck. (Luckily, not as many today.)
  • Big lesson learned over the last two days: when the nurse says “drink as much water as you can to flush the meds,” she is not issuing a challenge. Day of chemo, I drank 200 ounces of water in about eight hours. Saturday, I drank the same over about 10 hours. Too much. I felt like a beached whale by the end of the night.
  • Yesterday, my mom (who hasn’t left my house since Thursday night) deep cleaned/disinfected the entire house. I’m talking bleach and Lysol and every nook and cranny. My house smells super sterile.
  • I found my “cranial prosthesis” (aka wig). It was a great experience. The shop is owned by a woman who has been through cancer two times. I explained that I didn’t want to be old-looking or look like helmet-head, newscaster hair. I tried on about six wigs. One was a complete no, the other five were contenders. I took pictures and mom, the kids, a few very trusted friends and B weighted in. Everyone agreed on my first choice, which is very close to how my hair looks when straightened. A few positive comments on a second one (one friend called it “French assassin. Cute but sexy,” so I decided to order both. Unfortunately, there aren’t any nice curly hair wigs, so I’ll be straight for a few months. But, it’s probably for the best – if my hair grows back straight, I’ll be used to it.

Glad to be going back to work tomorrow. It wasn’t the holiday break I imagined, but I’m thankful I had the time to get so much medical stuff accomplished and have the time to process what’s going on. I feel good about where I am with my medical team and treatment plan. I feel pretty good physically and mentally.

No doctors until Friday, then it’s a quick appointment to check my blood levels and discuss how the week went. Next chemo treatment: February 6.

 

Chemo 1

Biggest dilemma Friday morning? What to wear to chemo. I wasn’t looking to look good, but I wanted an easy way for the nurses to access the port without having to change into a gown. I don’t own many button up shirts and most of my lower-cut shirts seemed too dressy (or showing too much cleavage) for chemo. I finally settled on a tank top under a zip-down Columbia fleece. I think this will be my uniform on Fridays through May. (Note to self: I probably need to buy another fleece.)

Chemo started at 8:15 with blood work, but there was a delay as soon I as entered the lab. Everything involving the port (where the blood would be drawn and chemo meds administered) must be sterile. So everything is prepackaged for convenience – the gloves, the tubing, the needle, everything. Unfortunately, I have a latex allergy – and the gloves in the kit are made of latex. There was a scramble to find non-latex sterile gloves (couldn’t be the gloves hanging on the wall since those aren’t sterile), and when they did find them, the stink from the gloves was overwhelming (like burning rubber), overall a delay of about 15 minutes before blood could be drawn from my new port (yay, it works!). The lidocaine cream I applied before leaving the house worked, and I couldn’t feel the needle going into my skin.

Met with the nurse, vitals taken, health reviewed, more talk about what to expect with chemo. Then met with the doctor and everything was repeated – with an emphasis on follow up visits (one week for more blood work and to meet with the oncologist). The oncologist asked how the kids reacted to learning of the cancer. Then he shared a story of when he learned his mom had breast cancer. He was 9 years old, same as Ethan. I knew I liked this dude.

During this time, a friend texted a few funny memories, making me LOL. B also sent a few lovey texts (so appreciated and needed XO) from his business trip to Colorado. Another friend sent encouraging words of support. All exactly what I needed.

Then to the infusion room. Because of the cost of chemo meds and the customized cocktail each patient receives, the pharmacy doesn’t start mixing the blend until this point (after blood tests confirm red/white blood counts and electrolyte measurements, and the physical exam is okay). Then everything is confirmed by multiple pharmacists and nurses. So another 25 minute wait. I settled back in my comfy recliner, plugged in the laptop, and waited. That lasted about two minutes. I was feeling antsy. Since I still wasn’t hooked up to anything, I walked around the infusion room – there’s a communal area with about seven chairs (where I sat), a handful of private rooms, and a few private rooms with beds (if you want a nap or can’t physically sit up for the duration of the treatment). There were some snacky things and a fridge of waters, juices, and sodas. There were some crafty things people made and donated for the taking. (I picked up knitted hat with a flower). Someone started a communal weave-thing (“Pick a ribbon and weave it through the strings. Leave a note for why you selected the color ribbon you did.” I did not participate this time.)

About 30 minutes after I arrived in the infusion room, saline was started through the IV in the port. The oncologist came back to find me. “You’re still having periods?” he asked. “You will be post-menopausal after a few treatments. Are you okay with that?”

“Is there an option if I’m not okay with that?” I smiled, laughed and asked.

“Not really,” he laughed.

“Then I’m okay with it. Let’s get started.”

He reiterated that he thought I would do really well with chemo.

A few more minutes of saline and then the nurse started a combination of three anti-nausea meds and a steroid. This was scheduled to take another 20 minutes or so before the actual chemo drugs would start. Lesson learned: there’s nothing hurried about this process. Sit, relax, watch Wendy Williams, chill. Know what I don’t do well? Sit, relax, chill. (I do, however, watch Wendy Williams well. I like her; she makes me laugh.)

Around 11:15 (and after I finished all three syllabi – YES!), the chemo drugs started.

“The Red Devil” was administered first. Three syringes of a bright red liquid needed to be inserted by hand by a nurse wearing full protective gear. “This is just to protect me if there are any spills…” she started.

“Toxic spills of what you’re injecting into my body,” I laughed.

The Red Devil is the drug that causes most of the problems – hair loss, mouth sores, major nausea, red pee. Twenty minutes later, the line was flushed, and the cyclophosphamide started. It would take an hour for it to run into my system. This is the drug that causes bone pain.

Overall, chemo wasn’t…bad. Comfy chairs. Cable TV. Wifi. Plenty of electrical outlets for iPhone, laptop, DVD player. Super nice nurses.

A woman named Roberta sat in the chair next to me. She was working on a watercolor of a bird. When she left, she gave me this painting and said, "It sounds like your journey is just starting. Best of luck to you." I teared up.

A woman named Roberta sat in the chair next to me. She was working on a watercolor of a bird during her treatment. When she left, she gave me this painting and said, “It sounds like your journey is just starting. Best of luck to you.” I teared up.

So, right now, I feel fine. Four different nausea meds should keep my stomach in check. Claritin should minimize the inevitable bone pain associated with my first two months of meds – as will a shot I’ll receive in 24 hours. Probably feel super tired Sunday/early Monday. Hair loss is anticipated at the two week mark.

I’m just glad to get this process started. We can’t end if we don’t start somewhere, right?

NOTE: I didn’t have my playlist from friends with me today, but I will next time. If you have any music recommendations, let me know. Doesn’t matter what kind of music – I just want music YOU recommend, to make me feel like I’m being hugged by my friends. (And thank you SO MUCH to those who’ve sent music!)

Added: the oncologist and surgeon both called tonight to see how I’m doing (completely fine). Also, wig fitting scheduled for tomorrow morning. Yippee!

My kryptonite

I found my kryptonite – Breast MRI. I tried again, with lorazepam this time. The test didn’t even get started before I quit. I just couldn’t get enough oxygen laying on my stomach. I was worried about hurting my recent port insertion site. And I fought the “relaxing” effects of lorazepam with all my might. I was the opposite of relaxed. See, lorazepam was one of the anti-anxiety meds Mike took after he lost his job. He took the pills like candy, to the point of being zombie-ish. Then he started combining the pills with alcohol, which rendered him virtually comatose. I just couldn’t shake the image of him on the couch, not opening his eyes, mumbling incoherently. I wouldn’t let myself relax, not with THIS in my body. I didn’t want to be like THAT. So, I basically walked in the MRI room and walked out – didn’t even start the imaging. Not happening.

Thanks (for the last time)

Dear Reader, If you’re squeamish or don’t like to read about menstrual cycles, periods, or Aunt Flo, you may want to skip this post.

Dear Period,

I just want to thank you for being there for me one more time. Oh, that’s right, this might be the last time, you know, so I appreciate how you’ve been present with (“super plus”-worthy) gusto this week. It’s hard to believe you and I have been together for more than 27 years, and that – NOW – we have to say goodbye.

Month after month, you’re there. A reminder that my body is working properly. That it’s been almost 30 days since the last time I saw you. It’s a cue to mentally review what bills I paid this month, to know that payday is coming soon, and to find my birth control pills for next month. (Oh, and during the college years, you were the “medical reason” insurance covered that prescription AND why my dad was okay with me “being on the pill,” so thanks for that, too.)

I’m torn. The security you bring when you arrive is fantastic. “You’re here! Great, I’m not pregnant!”

But you can also be a total drag. You’ve come at really bad times (hello, honeymoon). And really good times – “You’re not here? Great, I AM pregnant!” You’re how I knew I was carrying a baby in my uterus before any test could prove it – twice.

You see, I can almost set my watch and calendar by you. That’s how ridiculously consistent you’ve been, old friend. Like clockwork. No surprises.

And now we’ll be saying goodbye. Oh, it’s not that I want to. This ending comes much earlier than I anticipated. I really thought we’d have another 10 or 15 years together, at least. I even bought the jumbo box of tampons last month, never thinking we’d NOT be together. That’s commitment, that Costco-sized box in my bathroom.

But the chemo will take you away from me. Since I’m over 40, I’ve been told you’ll most likely be gone forever. How will I know it’s been a month? How will I know I’m not pregnant? How will I remember to pay my cell phone bill or mortgage (both due mid-flow)?

And of course, losing you comes with other consequences, other “stuff” I’m just not ready for – hot flashes, emotional rollercoasters, vaginal dryness. (I can’t even… Typing that last one sounds so… granny-ish.)

It’s almost like you knew this might be our last time together. You came in so quietly and sweetly, like “knock, knock, anyone home?” but woo-diggity, you made up for it after a few days. Crampiness, heaviness, fatigue – see, that’s the stuff that I won’t miss. You really could have done without going there. Seriously.

You’ll be with me another day or so, then you’ll slip away. Quietly, I hope. We may never be with one another again, you and I. But I’ll remember you.

Or not…since there won’t be a physical reminder, other than that big box of tampons, next month…

(Damn, what am I going to do with all those leftover tampons?)

Love,

Jax XO