Update to -1

Ethan’s teacher responded to my email. She was “surprised” that I sent an email and “sad” that I thought she “would be such an inconsiderate teacher.” After a couple of email exchanges, I have a bit of clarification, but not satisfaction.

Students were told to ask “any adult” to tell the story of where they were when the Challenger exploded. Some parents, as the teacher pointed out, were only a year old at the time, so it could be any adult. (A year old in 1986!? Now I feel ancient…) She said she specifically told Ethan he could ask his grandma for a story. Students received one point for each “story” they brought in.

Fine. However, “story” seems to be a pretty broad term. Literally, most students had one line – “my dad was home sick.” That’s not a story. That’s a statement. I wrote a story. A one-page story. The only story.

Also, while the kids see my mom regularly and B is becoming a more regular fixture during the week (YAY!), there’s one “adult” with whom the kids have regular contact. Me. It’s presumptuous to assume there’s anyone else around the kids on any given day. There is simply me. That’s only one extra credit point because there was only one adult around the dinner table with whom Ethan could get a “story.”

On the night of the assignment, I picked E up from school, and he was with my mom for about 40 minutes while I went to the gym. In that 40 minutes, at minimum, she emptied the kids’ lunchboxes, made snacks, ensured Lauren had all her winter snow gear for the next day, went through Lauren’s school folder, listened to Lauren read a story, helped Lauren with homework, and took the dog out to potty. She probably also moderated arguments between E and L, coerced them to change out of school clothes, tracked down Lauren’s water bottle (she always leaves it in my mom’s car), and who knows what else. Point being, there wasn’t  a lot of time for my mom to chat with Ethan about her recollection of that historical day.

Sometimes adulting is hard. Sometimes it sucks. Today is one of those days.

 

And you get -1 for not having a second parent

I’m pissed. I’m sad. I’m literally crying in a Panera Bread right now. (Since it’s too early for a drink, I’m medicating through pastries and massive amounts of caffeine.)

The kids attend a Catholic school, which means there’s an expectation for parental volunteering. I could write PAGES on how I feel about volunteering and how it’s (mis)handled at the school and why it’s best for everyone that I do the minimum (lest I be seen as a raging, controlling, know-it-all bitch), but that’s not today’s point. At the beginning of the year, I signed up to help with “Friday folders” in Ethan’s class. Basically, once a week, all the tests and homework and notes to parents have to be sorted and put into the correct kids’ folder to go home. It’s usually less than an hour every three or four weeks. I can do it alone, first thing in the morning when I drop off the kids, and still have the rest of my day for grading, yoga and errands.

Generally, I don’t pay much attention to anything I’m sorting. Look at the name, put in the kid’s pile, move on to the next. But there was one assignment in which I was interested.

The kids were asked last week to talk to their parents about where they were when the Challenger exploded in 1986. The kids had to write (or have a parent write) the response for extra credit. I told the kids the story of where I was and how I learned of the explosion. It was long and convoluted (junior high, screaming crying science teacher, seeing it on TV in the classroom after lunch, watching endless coverage that afternoon/night, sister’s birthday celebration that night downgraded and somber, Chicago Bears Super Bowl decorations still out around my grandma’s house where my sister and I were staying while my mom was in the hospital and dad was out of town). See, lots of detail. I remember it well. So I wrote the response. It was an entire page.

Ethan added a second part of the extra credit – how many Earths would fit into the sun? (1.3 million, if you were curious.) And he turned it in.

Today those responses were part of the work to be sent home. Most were short – “my mom was in high school” – few went into much detail – “my dad watched it in the library at UWM.” Mine was by far the most detailed and longest. (And it was the only one written in green Sharpie. Green for science, get it? Color coding!)  Ethan received two points extra credit (one for my response, one for the Earth/sun question). Great.

But several kids in the class received THREE points on the extra credit assignment. One point for the Earth/sun question, one point for mom’s response, one point for dad’s response. The teacher made three check marks on the papers that received three points – one check next to the Earth/sun question, one next to the mom’s response, one next to the dad’s response. Three points.

Two-parent families, in which both parents contributed to the “where were you” assignment, were rewarded more than those in which only one parent responded. (And, quite frankly, the generic nature of the majority of responses – “My mom saw it on TV. My dad saw it on TV.” – make me question how meaningful some of the conversations really were, and, honestly, if some of the conversations actually even took place.)

Spoiler alert: in our household, there is only ONE parent capable of responding since the other is, you know, dead.

It feels woefully unfair. It’s exactly what I don’t want Ethan – or Lauren – to experience: “your dad is dead and you’ll never be on the same playing field as kids with two, living parents. Those kids will always get three points, and you’ll be stuck with two points. You can’t ever get three points.

Exaggeration? Yeah, sure.

It’s just extra credit, you’re thinking. Big deal, right?

Wrong. This is a kid who continues to struggle with his memories of his dad. A kid who is still coming to terms with his grief. A kid who is ANGRY that his dad chose to drink beer and vodka and whiskey instead of choosing to LIVE to see his kids grow up. A kid who is very aware that he is different because his dad is dead. Dead. Dead.

Yeah, to THAT kid (and his mom), losing out on one point is a much, much bigger deal. It’s symbolic of what’s lost and can never be replaced.

It’s another more hurdle to overcome. One more time in which he won’t have something others will, through no fault of his own.

He will always be one point shy of his classmates’ scores.

Fuck.

Updated: I sent the teacher the following email (yes, regardless of what I say in the first paragraph, I’ve already jumped to conclusions, but I needed to write/post this blog or I would explode with rage). I’m eagerly awaiting her response:

Hi (TEACHER NAME) –

While doing folders this morning, I saw something that really disturbed me. I wanted to ask about it before I make any assumptions.

On the “where was my parent when the Challenger exploded” and Earth/sun extra credit, some students received 3 points, while others (like Ethan) only got 2 points. The only difference between those who received 3 points and those who received 2 points was the inclusion of information from both parents (Earth/sun=1 point, mom=1 point, dad=1 point).

Please clarify the point system, and if Ethan did not get a third point because asking his dad is impossible. Thank you.

–J

 

Ours

“Beautiful children. Are they all yours?”

We stopped for lunch at a mom-and-pop restaurant in a smallish town in the Upper Peninsula of Michigan, on our way home from spending Thanksgiving with B’s parents. (More on that another time.) An older woman behind the counter asked the question.

B was carrying his youngest daughter, following the server who was taking us to our table; Ethan was close behind, talking nonstop in B’s ear about something or other; and I was shepherding Lauren and B’s other daughter as we traversed the small entry of the restaurant, filled with knick knacks and tchotchkes for sale.

“Yes. Yes, they are,” I said, barely making eye contact with her as I made sure the girls’ heavy winter coats didn’t knock over something I really didn’t want to buy. I was busy holding the hand of one girl while directing the other by the shoulder.

The woman behind the counter followed it with, “But you both look so young…” and a sort of tsk-tsk sound.

Crazy lady, I thought. Of course they’re ours. What other kids would be with us? Does she think we found some kids alongside the road and brought them in for Swedish meatballs and limpa bread?

We were at our table at the back of the restaurant when it finally hit me what the woman meant.

“Are they all yours?”

Oh… are they OURS? Like O-U-R-S, mine and B’s? Well…

I felt a little foolish for  misunderstanding the woman. Yeah, they’re ours, but not technically O-U-R-S. Like if we start getting into if they’re our biological children and genetics and stuff… well, then…

But then, I realized I didn’t misunderstand the woman at all. YES, they are O-U-R-S. Damn, it, all four of them. For all their faults and all their goodness. For all the little arguments we referee. For all the cuddles we share. For the goodnight stories and kisses and late night movies and board games. For the helping make Christmas cookies. For the knock knock jokes at dinner. For the tears, for the laughter. For better or worse.

“Are they all yours?”

Hell, yes. Yes, they are mine. Yes, they are B’s. They, all four of them. They are ours.

Updates: radiation, kids, yoga, photo session

Cancer stuff: Radiation gave me second degree burns. In my armpit. Specifically in the crease of my armpit. It hurts badly, so I have a 3-inch by 3-inch gel pad stuck to it now. It’s cool and refreshing but oozy and weird. I hope it doesn’t dislodge itself and fall out during class today…

Tomorrow would have been my last day of radiation, but the oncology radiology doc decided to add a “boost” to my treatment. This means four more treatments, really super concentrated to the area in which the tumors lived. It makes sense – studies show a decrease in cancer returning in younger women with a few “boost” treatments. And the boosts will not affect the armpit area, so it can start to peel and heal. Thank goodness.

Radiation has been pretty easy. Lie down for four minutes while getting five doses of super powered x-rays, then on with my day. Other than a sunburned armpit and some slight fatigue, I’m handling it well. The only outward sign of radiation is the tanned skin my right side where the treatment happens. Overall, it’s certainly better than chemo!

Kiddos: The kids started back to school.

Kindergarten is kicking Lauren’s ass. She can hardly keep her eyes open during dinner, and she’s become super whiny until bedtime. She also sleeps until she’s woken up around 6:15 – completely different than the kid who was up by 5:30 every morning during the summer!

There was a bit of a hiccup in starting the year when I learned – at a parent meeting less than 36 hours before the first day of school – that Lauren would be required to wear a uniform this year. (Previously K4 and K5 did not wear uniforms. Apparently there was a communication that came home at the end of last year, but only three K5 families received it. There wasn’t any more communication from the school over the summer. Some found out through word of mouth and others were just learning of it also.) I spent the summer buying clothes for her to wear to school – and I checked and rechecked the dress code in the parent handbook (which wasn’t updated until VERY recently). I freaked out in that meeting, and I sent the new principal a strongly worded email that night. And… the new principal completely impressed me with her handling of the situation. She called me promptly the next morning (day before school) and offered that Lauren and the kids in K4 and K5 would not have strict enforcement of the uniform policy (so she could wear regular clothes when she wanted), and the school had a few smaller size uniforms we could have. Turns out, Lauren LOVES her plaid jumper. I’m out the cost of what I spent on school clothes, so I’m letting her wear them anytime, anyplace. She’s growing so fast that most will be too small soon anyway.

Ethan’s in fifth grade. He’s trying to find his place among his peers. Most of the boys play a sport or two, but Ethan hasn’t shown any interest in sports since Mike died. In fact, he’s specifically shied away from most sports – Mike was Ethan’s coach for baseball and soccer and helped (a little bit) practice football at home. He’s been reprimanded for talking out of turn during classes or hurting someone’s feelings. On one of the “feelings” situations, I have to side with Ethan. The kids were working in small groups to come up with “rules” for the class, and one kid suggested something like “we will give 110 percent in class.” Ethan called the kid out for the “110 percent” thing, saying it’s impossible to give more than 100 percent AND he strongly believed that in a school environment, they should focus on the facts not “bad math.” We talked about how he could have addressed his concerns in a more suitable way, but I also high fived him for identifying the flaw. (The teacher kept the 110 percent thing in the class rules, much to Ethan’s chagrin.)

Other stuff:

  • Mom and I started yoga. There’s a class at the Y for cancer patients and their caregivers. It’s not very physical, but there’s a lot of focus on stretching and breathing. The woman teaching the class also shows us how to modify some of the positions to meet our physical needs (like not putting too much pressure on the arm on the side where lymph nodes were removed). It’s an open-ended class, so no real beginning or end. Mom is loving it. I’m in it for a while (especially to learn the modifications), but I’ll need something more challenging at some point. Still it’s a cool thing to do with my mom once a week.
  • Friday will be my second boudoir photo shoot, complete with SUPER short hair and lopsided, mismatched breasts. (The first session was right after I started chemo – and still had hair, and the last session will be in the spring/summer – after reconstruction and after I have ((hopefully)) decent hair.) I’m hoping it’s as fun as the first time!

Two weeks

I’m two weeks post-surgery today. I feel great – no pain and full range of motion on my right side – so much better than I thought I’d feel at this point.

In the last few weeks, I’ve had four doctor appointments, and one more scheduled for tomorrow. Thank goodness the cancer center is only a few miles away! The surgeon couldn’t believe I wasn’t in more discomfort or pain. The plastic surgeon checked all the incisions, removed my drain, ordered me to not lift more than 10 pounds (an increase from five pounds – yay!), avoid stress that would lead to high blood pressure or increased heart rate (easy with kids, right?!) and to wear a bra 24 hours a day (ugh). Also, I have to leave on a clear sticky surgical tape covering my incisions for another two weeks – because it’s so sticky, it’s full of little fuzz balls from towels and clothing. Yuck! The oncologist was giddy with the pathology results. He actually giggled at the success of the chemo and surgery. Of course, he’s also the one who proclaimed he loves “to kill cancer!” The oncologist said based on the pathology report and after I complete radiation, my odds of a reoccurrence would be “really, really, really low.” Woot!

The fourth appointment was with the lymph edema clinic – and a new doctor. Because lymph nodes were removed (only the three sentinel nodes), I’m at risk for lymph edema. After meeting with the lymph edema team, the thought of this condition scares me more than anything I’ve been through. The chance increases the more nodes are removed, and since I only had three removed, my risk is slight. But it’s a condition I’ll have to watch for – for the rest of my life. Any break in the skin (from a bug bite, needle stick, scratch), burn (including sunburn), “crushing” (like laying on the arm at night or having blood pressure taken on that side), or repetition (like up-and-down painting of a wall or the motion of cross country skiing) could cause a build up of protein within the cells that cannot be filtered out through the lymph system. This could result in swelling requiring compression sleeves and gloves, the need for lymph massage (not the relaxing kind of spa treatment I enjoy), or other treatments depending on the severity. It sucks.

But my biggest issue right now is figuring out what to do with the left breast. The right breast is amazing, but the left one… well, a friend summed it up by saying I’m my own before-and-after, at the same time. The left side is larger and lays lower on my chest – heck, it’s been exposed to gravity for 41 years so it sags a bit. When I look down, there’s a two-inch slope downward from my right breast to my left. It’s temporary – reconstruction has to wait until six months after radiation, and I thought it would be no big deal. But it is. I’ve scheduled a few appointments with bra fitters this week (what’s a few more appointments?!), but I don’t want to spend a ton of money (since it is a temporary condition). Worse case scenario, I’ll wear a LOT of scarves to cover my chest. Thank goodness I live in a climate where I can wear scarves from September until May! First world problems…

The kids have been great through all this, but they’re starting to get antsy, and, unfortunately, school doesn’t start until the end of the month. It hasn’t been the most fun summer – no road trips to the Gulf coast or weekend getaways this year. Everything has been dependent upon “how mom’s feeling.” Sure, they’ve been mini golfing and to the movies and fishing/camping (with my mom), but it hasn’t been our usual summer. I really need to think of a way to make next summer extra special…